not much is changing in this realm because we’ve been so proactive to get her the services and support that she needs. we will be increasing her physical therapy and we’re actually going to have her fitted for her new brace today. the main goal is to protect her left leg from hyperextending and decrease her foot from turning in so badly, as well as hopefully prevent some of the falls. we’re working mainly on strength during physical therapy and increasing tone with our at-home exercises.<\/p>\n

honestly, not a whole lot. i’ve spent a lot of time reflecting on the amount of times i sat across the table from parents explaining that the biggest benefit of having a diagnosis is that it’s a good starting point for a plan of treatment.
\ni don’t care if you call her ‘purple’…but if it gives us access to support, treatment, therapies, or a starting point for treatment…then let’s do it.
\nbut the reality is that my heart fell to pieces sitting in that appointment. my heart still hurts.
\ni wasn’t surpirsed or shocked… i knew it was coming. but the words hurt because the reality of it is that she won’t grow out of it..
\nfor now, we are strongly discouraged from doing activities that will encourage her hyper mobility {think dancing + tumbling}, but are encouraged to do swim lessons.
\nshe will probably have her brace on her left leg longer than we were anticipating.<\/p>\n

i’m tired. my cheeks are tear-stained. and my mama heart aches.
\nbut i have SO much to be thankful for. as i said before…she has a very<\/em>\u00a0mild <\/strong>case.
\n<\/strong>this hasn’t affected her cognition, communication, or social skills and for that, i am shouting praises.
\ni took 2 weeks to be sad. to hurt + cry…
\nthe funny thing is that the day she was diagnosed, i was throwing myself a pity party and she was being a complete b.r.a.t. after naps… i had her in the bathroom and asked her to pull up her pants. she was throwing a full on tantrum and it was my last straw, so i’m crying and she hauls off and kicks me square in the shin and screamed ‘no!’ in my face… sooo. long story short, she is still her feisty self and sassy as ever.
\nfor the first time ever, i thanked god that she had the ability to kick me.
\n\ud83d\ude09<\/p>\n","protected":false},"excerpt":{"rendered":"

i really wasn’t planning this post for today…but every time i have sat down to write anything, i keep coming back to this. blogging is such a weird thing sometimes. finding balance in sharing too much or not enough in transparency… being too ‘happy’ or being a downer. but the reality is that this little […]<\/p>\n","protected":false},"author":1,"featured_media":6274,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[370,275,276],"tags":[373,372,279],"yoast_head":"\n